Stronger together, we are 10 Strong

Resources

resources2-1In our opinion, when you hear “don’t search the internet” it only applies to a blind search of your child’s diagnosis. There are many amazing resources out there for you to educate, offer financial support and smiles for your child. Here are a few of our favorites:

 

CLINICAL TRIALS

CenterWatch  Has the largest online database. Assists patients in finding and volunteering for clinical trials.

Children’s Oncology Group Provides important information from diagnosis, through treatment & following cure.

NCI A registry and results database of publicly and privately supported clinical studies of human participants conducted around the world.

 

EMOTIONAL SUPPORT

Cancer Care The leading national organization providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer.

CaringBridge Website of a personal health journal, rallying friends & family during any type of health journey.

Grouploop A safe place for teens who have been affected by cancer to connect and find support.

Teens Living with Cancer Offers information & resources about cancer, treatments, and support network presented by teens for teens.

 

FINANCIAL SUPPORT

Allys house  “Supporting Oklahoma kids since 2004”

Sheridan’s Sunshine Foundation An Oklahoma foundation helping families with expenses during treatment.

Eden’s Fireworks An Oklahoma foundation raising awareness & funds for childhood cancer & helping families during treatment.

Alex’s Lemonade Stand A foundation funding research & helping families, while getting kids involved & spreading awareness.

B+ Foundation Kids helping kids fight cancer through family assistance, research and advocacy.

Cancer Fund of America Giving cancer support to cancer patients.

Childhood Leukemia Foundation An organization dedicated to bringing hope.

First Hand Foundation Provides funding for children when insurance and other financial resources have been exhausted.

SSI Supplemental Security Income (SSI) is a Federal income supplement program funded by general tax revenues (not Social Security taxes): It is designed to help aged, blind, and disabled people, who have little or no income; and it provides cash to meet basic needs for food, clothing, and shelter.

Ronald McDonald House Charities A home away from home for sick children and their families.

United Healthcare Children’s Foundation Provides medical grants to help children gain access to health-related services not covered, or not fully covered, by their insurance.

Wigs for Kids Nonprofit organization serving kids suffering from hair loss.

 

HEALTH INSURANCE

Healthcare.gov  Official site of Affordable Care Act

Patient Advocate Foundation Helps patients settle issues with access to care, medical dent, and job retention related to their illness.

SoonerCare (OK Medicaid) This program helps pay some or all medical bills for many people who can’t afford them.

TEFRA The Tax Equity and Fiscal Responsibility Act (TEFRA) of 1992 allows children with physical or mental disabilities, who would not ordinarily be eligible for State Supplemental Income benefits because of their parent’s income or resources, to become eligible for SoonerCare (Medicaid).

 

MEDICAL

Children’s Oncology Group Provides important information from diagnosis, through treatment & following cure.

Leukemia and Lymphoma Society Funding research, finding cures and ensuring access to treatments for blood cancer patients.

National Brain Tumor Society Funding trials and treatments for people living with a brain tumor.

National Cancer Institute Credible, current cancer information from the U.S.

 

TRANSPLANT

ExploreBMT.org Provides direct access to information and resources from many trusted, patient-focused organizations.

National Foundation for Transplants Helps w/ the cost of transplant when insurance/gov. programs don’t cover all costs

The Bone Marrow Foundation Offering financial aid and support services to patients and families

 

TRANSPORTATION

Air Care Alliance An umbrella organization for Public Benefit Flying organizations.

Air Charity Network Comprised of all of the independent charity organizations that arrange free air-ambulance flights for those patients and families in need.

Corporate Angel Network Charitable organization whose mission is to arrange free air travel for cancer patients to treatment centers by using the empty seats on corporate aircraft flying on routine business.

Mercy Medical Angels Provides charitable air transportation for those in great need.

National Patient Travel Center Resource with information about free air transportation to distant medical facilities.

 

WISH FOUNDATIONS

Make-A-Wish Foundation Grants the wishes of children with life-threatening illnesses.

Sunshine Foundation Sole purpose is to answer the dreams of chronically ill, seriously ill, physically challenged and abused children ages three to eighteen, whose families cannot fulfill their requests due to financial strain that the child’s illness may cause.

Wishing Well Foundation USA Will fulfill the fondest wish of any child not expected to reach adult hood.

Stage 4 Life Will provide an opportunity for laughter and relief to those facing a stage 4 diagnosis.

 

 

 

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